Tour de Cure - Biking towards a cure for Patrick and ALL people with diabetes!
Hello friends and family!
It's time for our family and team to once again participant in Tour de Cure! We continue to fundraise to support diabetes advocacy, education, and research. This year our participation has lagged quite a bit due to the change of the date and other scheduling/fundraising planning obstacles. We hope you can help us reach our goal!
Patrick started high school today (as I write this participation post) and I'm struck by how I didn't worry once today regarding his diabetes. His management is not perfect nor is my support of his management. There is always room to grow and challenges along the way. Due to access to new technology such as a continuous glucose monitor (CGM) that doesn't require finger sticks (AMAZING!!!) and a strong foundation of diabetic organizational skills (he packed SO much back up sugars in his backpack) I knew he'd be great. There are moments when I can see his sugar dropping (on my phone) but I know he has a wonderful support network and strong communication skills to share with others when he needs help. This summer he had the opportunity to sail in the Florida Keys for a full week. His insulin pump broke on the trip requiring activating his back up emergency plan, out on the water, without medical help nearby - and he did it! His endocrinologist says that he has now passed his 'extreme diabetes boot camp' test.
The diabetic technology that I refer to - his pump and CGM are now items often covered by Medicare. This is progress for SO many people who have diabetes. It's progress made possible by the advocacy efforts of great organizations such as the ADA. In addition the ADA has a wealth of resources for people with diabetes and their family members. As we navigate the teenage years, I have leaned a lot on their educational materials for insight and tips. Without over sharing the ups and downs of the past year (respecting teenage privacy is important) I will share that parenting a teenager with diabetes has been more challenging than I anticipated. Our village has been of immense help. Thank you to our wonderful village of support. Whether you have donated to our team, joined us, listened to me when I worried or complained, or said a prayer for us - we appreciate your love and support beyond words.
Tour de Cure and giving back to the diabetes community that has supported us remains near and dear to our hearts. We hope you can help us reach our fundraising goal.
A million thanks to you.
Love, Viv and the Swingle men
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